Alzheimer's

Folder: 
Family

When you told me my wife,
that I would not get better.
I told you that I would try,
to accept it and not be bitter.

I tried to tell you love,
to let me go eventually.
Don't linger with my body,
when my soul is in heaven.

Please don't remember me,
the frail confused man.
That struggled to understand,
you leaving me in this place.

I know my reaction was hard,
for you to continue to forget.
But that was merely a reflex,
a survival skill since birth.

For it is instinctual to cling,
to the hand that keeps us.
Not the emotional good-bye,
you secretly wanted it to be.

Now that I am settled here,
people expect my behavior.
Being free to wander is nice,
no you worrying of the danger.

I never would have wanted,
you to waste your health on me.
If there is naught you can do,
don't chase my shadow please.

Grateful am I for the drawings,
and pictures to make my room cozy.
The grandkids grow up so fast,
I'm glad you got to know them.

Memory books seem so simple,
but they make people realise,
I didn't just exist in this vaccuum.
I had a whole other life.

So many years I worked like a man,
now I struggle to hold your hand.
I might call you anothers name,
but I am happy to see your face.

When you bring me in fruit,
or my favourite milkshake.
It makes me remember to love,
all the things I used to eat.

But you try eating my dear,
with all these distractions.
Here things are simpler,
with fewer expectations.

In this atmosphere I learn,
to relax and to keep trying.
Knowing that if I spill milk,
that no one will be crying.

There are times I struggle,
to let others do for me.
Its like my muscles know,
when my brain forgets how.

They might think I'm such a pain,
but my life is not in vain.
So help me along younger ones,
help me to get things done.

I may not know how to dress,
but I feel your arm at my waist.
Hugging is not a foreign idea,
for the father of six children.

Bathrooms might challenge me,
with their confined spaces.
But with lots of patience,
I will relax enough to pee.

Anger may haunt me sometimes,
if you invade my space agressively.
But if you treat me respectfully,
you'll find me pretty peaceful.

Eventhough I'll can't tell,
anyone of your kindness,
in the heart of my wife,
you'll remain loved always.

So when you find this letter,
from me my dearest love,
please pass along my messages,
so I can let it all go.

 

Author's Notes/Comments: 

For Kim

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Jessica Amy LeBlanc's picture

Hi,
I am writing this from the standpoint of a grandchild of a woman with this terrible disease. I have ask was this was written by someone who actually has the disease or is it a rhetorical situation? It's so sad to see my grandmother when she doesn't know who we are anymore. At least I know she's being well taken care of in the home and that she's happy and doesn't seem to know the difference between that place and her own home. At least for now until it gets worse. But thank you for your insight.
Sincerly,
Jessica

Ruth Lovejoy's picture

wow more profound then before!!!!!!!!!

Ruth Lovejoy's picture

profound, I work in a Altzheimers unit so I know well of this topic. Sometimes they can't verbally communicate but they know a smile,a hug,they know how to recognize people who are gentle and who are rough.Yes,it's a sad disease of so many stages and changes.I wish we could better educate people on this topic